I am looking for people with Myasthenia Gravis and am feeling so isolated anyone want to talk to me?I had a thymectomy in Oct of last year and am SO much better. Now I am feeling so useless and don't know what to do with myself. There is too much time to think and not enough energy to do the things I should do. I am fortunate that my symptoms are not as severe as before and I am very grateful. I have so much pain in the back of my neck and shoulders that I get very depressed. Does anyone have any suggestions for this pain and weakness in the neck.
I have never asked a question on this forum because I don't want to complain. I know that many people here are much worse off than I am.
Answer by Loretta M
Elizabeth, I am glad you contacted me but I would like to put this online for other people that may have Myasthenia Gravis or do have it.
I did have my thymectomy 5-1-97 and I felt great for a while. want to reinforce here that you don't have pain with MG...you have muscle weakness. You could be overusing the muscles in your neck and shoulders that have become weakened by the MG.
You have to be careful with the meds that you take with MG. There is a list of to take with caution drugs. No muscle relaxers please!! I have been able to take Vicadin with no reaction. When I was given cipro, an antibiotic, I was on the ventilator within 20 mins of it being injected in my IV. That was the doc's fault for he saw the list but laughed. I was too weakened to say to the nurse...what are you going to give me? It is crucial that you educate yourself of this disease. You can't reach out to the ordinary community on this for they don't know of the med restrictions on this disease. Anything that would suppress the breathing isn't good either.
For you feeling of usefulness thus being depression, I recommend that you find a neuropsychiatrist that is educated on the affect of neurological diseases on the psychological aspect. It is real. I have been going to one since 1997. Outside factors like stress, loss of a loved one, etc. can cause MG to flare. I take an antidepressant named Wellbutrim and I do very well with it.
Respond to my email I sent you and I will help you more. I am 11 years down the road with this disease and very educated on it. Plus I went through hell with it and had to get very smart to protect myself!!
Know better? Leave your own answer in the comments! Get information about back pain, lower back pain, neck pain, and sciatica, and learn about back pain causes, treatments, and medications.
Gobackpain Back Pain Health Center – Information and News About Back Pain
Orignal From: Back Pain Info:I am looking for people with Myasthenia Gravis and am feeling so isolated anyone want to talk to me?
No comments:
Post a Comment